It’s been a long time since I last put an update out. In that time, my father died. He was an amazing man who loved his wife, kids, and Miami sports, mostly in that order. There’s too much to say about him to contain it here. Maybe it is easier, emotionally, because we are far away. But in some ways, I keep expecting him to show up on my caller ID or send me a text. 

Other news: 
I have had more appointments than a person should, and at least two MRIs. In addition, our family has added our first grandchild, our daughter is engaged, and our youngest is busy in his senior year.  Paula continues to be my great source of encouragement, my faithful caregiver/scheduler and my best friend. 

So medically, I am doing ok. I was recently reminded that my disease is aggressive. But I was also told that I am in remission (which means my disease isn’t growing, not that I’ve been cured). 
Emotionally, I could be better. The unknown is a hard place to live. No one can know what the future holds, so there is an element of uncertainty for each person. But the sudden change and subsequent struggle has been exhausting. I’ve lived in this for almost 3 years (first symptom was 10/19/23).  I have mood swings too, which makes it difficult for people around me. 

One question I get a lot is will I be able to return to work at the church. While I certainly want to, the bottom line is I don’t know. My vision is still cut - like a screen pulled in front of both eyes. My left eye compensates to fill the gap, but I have about 90 degrees that I can’t see. For our recent trip for my dad‘s funeral, I finally broke down and bought a cane for a visually impaired person to let other people know. My mobility continues to improve, which is encouraging. My concentration and focus keep getting better as well. So I expect to be able to do more than I have been. My left foot is still catching up. Healing requires energy and I need a nap almost every day.